John had an excellent day yesterday and I will put up some pictures on a later post regarding how Tuesday went, but today we are seeing further progression with his disease that impacts visitation.
Today saw a significant spike in his pain level which triggered a number of side effects which required our full attention. The
hospice team has adjusted his medication to address the breakthrough
pain and hopefully this will prevent another occurrence for a while.
First I want to thank all of you that have either come to San Francisco while he was in their hospice care or those that have come to our home since last Friday. John has enjoyed those visits thoroughly as I am sure you experienced. However, I expect those that saw him a week or more ago at UCSF, and then this week at home, have noted that he is increasingly drowsy and lethargic.
John enjoys visits, especially from his wonderful friends from all over, as well as his beloved cousins. However one of the changes we want to apply to visitation is, that while we still encourage visitation, we may designate a day as a "quiet" day where we have limited to no visitors. Additionally, even if you have planned with us a visit it may turn out, as it did today for my aunt and cousins who came by, that not only was John unable to visit but we were tied up with his care. Luckily that part of the family can entertain themselves quite well :) I encourage all to check in via text or call to me (408) 712-4930 that it is still a good day to visit prior to coming over.
I hope you all can understand our need to apply these constraints. Do not hesitate to come but do understand if we decline for a given day. We know that we have tremendous support from all of you, not only now, but all through the journey. Your love, prayers and thoughts have been a salvation for our family. Thank you.
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